Since my last post my disease has steadily gotten worse.
I’ve tried countless supplements. A Physicians Elemental Diet for 14 days to reset my entire digestive system. Going back on the AIP diet. All to no avail.
This is by far, the worst my disease has been. I called my rheumatologist and discussed going back on meds. I requested trying Xeljanz again. It’s been a long time since I’ve been on meds and a couple years since trying Xeljanz. My hope is that my body will respond.
Starting immune suppressing drugs during a pandemic is not what I want to do, but I know my body, and know it’s time to try and stop the disease progression and damage it’s causing.
The benefit of Xeljanz is that it’s a daily pill so if I do get sick with COVID, or anything else for that matter, I can stop it temporarily and let my immune system fight whatever it needs to.
And speaking of COVID, I just had the antibodies test done to see if I had it and was asymptomatic. Having been in a house with people that were sick, I would have thought I was going to get it. I’m curious if I had it and that’s why my RA symptoms have gotten so much worse. Any virus, bacterial infection, or pathogens can aggravate symptoms by causing an immune response. More on that to come when my labs come back.
In the meantime I’m waiting to figure out the cost of the meds and what kind of assistance I’ll get to pay for them. I started a new job on December 21st which has been a God send allowing me to work from home.
I joined a nice gym where I can go and try to keep up my workouts and have some equipment at home for days I just can’t go and do a big workout.
I continue mindfulness and meditation to try and keep a positive mindset. Some days are hard though. On those days I’m working on allowing myself to cry and accept that I can have bad days and that’s ok too.
Don’t take your health for granted and love on each other.