Rest

22 weeks symptom free before the world went crazy.

I am starting to feel symptomatic. I’m trying not to go down that rabbit hole. Stress is always a factor in my disease and up until a few days ago I thought I had it under control.

I am doing everything I can to try and return my mind, body, and spirit to one of almost no pain and inflammation.

I’ve restarted the anti viral protocol I did earlier this year before going into remission. I will make sure that I am 100% on point with my diet. I admit to eating gummy bears lately as a “cheat.” I know better. And I am taking some supplements to hopefully reduce my symptoms without having to resort to prednisone.

I’m using the BEMER and practicing my meditation more frequently and with greater intention on healing.

And most importantly I am counting my blessings. I am loved. I still am able to work even though the gym is closed. I’m off the meds that would have put me at greater risk during the COVID 19 pandemic. I’ve rekindled a friendship that meant the world to me.

So amidst all the stress there is good. And as much as I am one to push through, I will allow myself extra time in these days to rest.

Don’t ever take your health for granted and love on each other 💜

Time for change

It’s been a while since I have written. Life has been incredibly busy.

In my last post I had come off Kevzara because of an allergic reaction. After that my rheumatologist put me on Olumiant, a once daily pill similar to Xeljanz. It’s a JAK inhibitor with an added black box warning of deep vein thrombosis and pulmonary embolism, in addition to the typical scary side effects that all the biologics have.

Similar to my experience with Xeljanz I felt some improvement in about 3 weeks. And similar to my experience with Xeljanz that improvement was short lived. I had a UTI, also a common side effect, and had to hold the meds while I took the antibiotics. Also similar to Xeljanz I began holding fluid in my legs. And not just a little fluid. About 8 to 10 pounds heavier with swollen feet and ankles every day. By the end of the day I was loosening my shoe laces to the point where they barely tied.

My rheumatologist said to stay on it. The medicine didn’t say that fluid or weight gain were side effects but that it’s too new of a drug to really know all the side effects. Perfect….

In the meantime I sought the help of a naturopath doctor. In our first 2 hour meeting she looked over some bloodwork I gave her and identified an issue that predisposes me to blood clots. So my rheumatologist was given the same bloodwork and never questioned my elevated homocysteine levels. And is not concerned that the meds have clots as a side effect or just didn’t look at the info I gave her.

That’s the final straw for me. I have failed methotrexate, Xeljanz, Humira, Kevzara and Olumiant. All due to side effects and no benefit.

I told my rheumatologist that I was stopping the meds. The naturopath shipped me a turmeric tincture to start. I’ve been taking turmeric capsules but they’re drug store variety, and not in this strength.

In the 5 days off Olumiant the fluid is almost gone. I started Tumero 10 mg 2X a day on Friday.

I’m hopeful and optimistic that the naturopath will help get to the root cause of my disease and treat it not just my symptoms and suppressing my immune system but bringing it into balance.

I know the answers are out there. It’s time for a change since what I’ve been doing isn’t working.

Fear

I’m 3 months into the autoimmune protocol diet. The knowledge of food allergies has helped me fine tune my eating even more. I added back two food groups and will be tweaking to determine if they’re inflammatory. My pain is coming back to levels I haven’t been having, and with the pain comes fear.

I’m afraid of how bad the pain gets. I’m afraid of the medications and their side effects. But more than that I’m afraid of losing my mobility.

I’ve been off the Kevzara for a month trying to rule out an allergic reaction. I’m trying to decide along with my rheumatologist if I will try it again or go on to the next step.

My prescription vitamin blend came in and I’ve been taking it for two weeks. I’m hopeful that they will be absorbed by my body and begin to help. We’ll do some blood tests in 3 months to see.

Healing my gut and my body will take time, patience, and persistence. I know that all the damage was not done overnight and will not go away overnight.

In the meantime I continue to move and strengthen my body and I am thankful that I can.