Fear

I’m 3 months into the autoimmune protocol diet. The knowledge of food allergies has helped me fine tune my eating even more. I added back two food groups and will be tweaking to determine if they’re inflammatory. My pain is coming back to levels I haven’t been having, and with the pain comes fear.

I’m afraid of how bad the pain gets. I’m afraid of the medications and their side effects. But more than that I’m afraid of losing my mobility.

I’ve been off the Kevzara for a month trying to rule out an allergic reaction. I’m trying to decide along with my rheumatologist if I will try it again or go on to the next step.

My prescription vitamin blend came in and I’ve been taking it for two weeks. I’m hopeful that they will be absorbed by my body and begin to help. We’ll do some blood tests in 3 months to see.

Healing my gut and my body will take time, patience, and persistence. I know that all the damage was not done overnight and will not go away overnight.

In the meantime I continue to move and strengthen my body and I am thankful that I can.

DNA, food allergies and vitamin deficiencies.

Before the end of the year I had a bunch of bloodwork done which included DNA testing, standard tests such as cholesterol; and hormone, vitamin, and allergy tests.

I got all the test results back last week. I believe all the information I now have will help me in the treatment of my disease.

The DNA results are interesting. I have information that can be given to my rheumatologist as well as other doctors to help make decisions about medications based on my genes.

I found that I have two food allergies. I am allergic to milk and egg whites. In the past month or so I eliminated both milk and eggs on the autoimmune protocol diet (AIP diet) so keeping them out of my diet permanently should be fairly easy.

I did some reading about milk and egg allergies and how they manifest, and there is some evidence that they can cause an autoimmune response. So hopefully keeping them out of my diet will settle my immune system down some.

My vitamin levels are out of balance as well which is not uncommon in RA patients. My vitamin D is very low, as is my vitamin A, and my vitamin C level was almost nonexistent. I couldn’t believe it because not only do I eat copious amounts of fresh vegetables and fruits, but am religious about taking my vitamins and supplements. Thanks RA for yet another fun aspect of the disease.

I’ll be starting a prescription vitamin blend based on my needs and genetic make up. So my levels will be brought to the best level for me not the broad government standards. It will also have a substance to help me absorb them since my body is not doing it well enough on its own.

Once my vitamin D, C, and A are brought up my hormones and other levels should become balanced and I should feel a lot better!

I’ve stayed on the AIP diet through the elimination phase and just added legumes/beans back to see how my body responds.

I also have a call into my rheumatologist because I believe I had a reaction to the last Kevzara injection I did on Tuesday. I’ve had similar site reactions like I did with Humira, and had a significant rash/hives within 24 hours of the last injection.

We’ll see if she wants me to continue treatment or hold off. I would be willing to take a break from meds and pursue the AIP diet knowing that the 2 food allergies could have been impacting me greatly.

I still believe remission is possible and that my body has the ability to heal and be well.

I’m definitely persistent enough to keep trying.