Rest…. and heal

Orencia injections…the day after includes lots of puppy snuggles. Last night was injection #8 so two months and waiting to see if it’s going to really start working. Four more shots/weeks to go before the rheumatologist and I make the decision to stay on it or move onto the next medication. 🤔

Last night I must have hit a capillary because I had a fair amount of bleeding after the shot. That was surprising lol I’ve never done that before when injecting 💉😅

Ran my errands this morning. Headache woke me up as usual so then I just get going because I know by afternoon I will hit the wall and need to lay down. No appetite either. Weird.

Still working on timing the shot so the entire weekend isn’t a bust.

I’m slowly coming to accept that my life is never going to be what it used to be. My disease is teaching me to accept days like today as part of the process of finding something that works. I’ve never been good at being still. But I’m learning to rest so I’ll begin to feel better.

Hoping I’m on the right course and that these meds will work!

#rheumatoidarthritis #healingjourney #chronicillness #curearthritis

Just keep going.

I tell myself this at least three times a day. It’s been a little while since I decided to go back on medication. Stayed on Xeljanz for 7 weeks with zero improvement.

The only relief I get is taking Celebrex daily. I hate that because I know what NSAIDS do to gut health. But without it I’m not able to function.

My rheumatologist took me off the Xeljanz and we are going on to Orencia injections. Insurance approved it and I got patient assistance to be able to afford it. I certainly don’t have $4,000/ month extra lying around. I can handle $5 though.

I just started going back to the gym and pushing through workouts. Modifying lots, excluding lots, but still going.

I’ve been in such a dark place mentally because of the pain and inability to workout the way I used to. Going and accepting my limitations has been difficult for me. But I’m going.

So the new meds will arrive next week and I plan on doing the injection on Friday in case I have any reactions I’ll have the weekend to deal with it.

I’m hoping it will work and I’ll get my quality of life back. In the meantime I’ll remind myself to just keep going.